Waking up one morning to be told your child
has cancer. Seeing your child with a tube
hanging out of their chest and out of their
nose. Not being able to take your child to the
cinema, bath them and take them swimming.
Signing forms to allow toxic drugs to be
pumped into their bodies, for weeks, months,
even years. Blood transfusion after blood
transfusion, infection after infection because
they have no immune system. Having all this for
up to three years. Being told that because of
the treatment needed your child will be
sterile, your child will have brain damage and
your child will have lung, kidney, heart and
liver damage, together with stunted growth.
Being told that your child may need treatment
for the rest of their life.
That’s what happened to me in 2007 two weeks
before Reece’s second birthday. Over the next
year I spent over 260 days in hospital,
watching many children visit the brink of death
and recover, some did not. I realised I had to
do something, not for research, or for the
hospital but something for these kids, today
and now. I knew I could make them smile;
children love presents and toys, so I decided
to set up Little Heroes to give these kids
presents whilst they undergo aggressive cancer
treatments.
When I say his treatment has been tortuous,
I mean it wholeheartedly.
To watch him lie in his bed for 4 days not
moving due to chemotherapy drugs, with him on
monitors to make sure he stays alive, to move
back and watch as doctors and nurses struggle
to keep him breathing. Watching him lose his
hair twice, the result of the poisonous drugs
which keep him alive but give him side effects
too terrible to comprehend. To watch him
recover from an infection, then fall victim to
another one in a matter of days, but worst of
all, to know that he may have to go through it
all again over the next 3 years.
Normal activities, such as playing football,
playing in the sea, are now defined by the
necessary hospital visits for blood tests,
transfusions, chemotherapy and radiation.
This is what I and parents of children with
cancer go through every day.